West Midlands Regional Centre for Cleft Lip & Palate Birmingham Children’s Hospital NHS Foundation Trust
Principle contact details
| Contact name: | Ms Rona Slator, Clinical Lead |
| Address: | Birmingham Childrens Hospital Steelhouse Lane Birmingham B4 6NH |
| Country: | United Kingdom |
| Telephone: | +44121 333 8235 |
| Email: | cleft.services@bch.nhs.uk |
| Web address: | Visit website |
Other team members
| Surgeon: | Mr Bruce Richard+441213338132; Ms Patricia Rorison +441213338129 |
| Speech therapist: | Mrs Alison Jeremy (lead SLT) +441213339387 |
| Orthodontist: | Mr Lars Enocson (lead) +441213338078 |
| Clinical geneticist: | Dr Jenny Morton +441216272360 |
| Otolaryngologist: | Mr Michael Kuo (lead) +441213338139 |
| Specialist nurse: | Mrs Michelle Jones (lead) +441213338092 |
| Psychologist: | Dr Rebecca Hodgetts +441213338062 |
| Other: | Mrs Victoria Clark – Dentist +441213338078; Mr Ian Sharp – Maxillofacial Surgeon +441213338078; Ms Caroline Tiernan (Lead Audiologist) +441213339360 |
| Patient follow up: | Cleft Administration Team: Mr Alexander Levine, Information Manager; Mr Mark Bridgens, Clinic Coordinator: +441213338235 |
Support group
| Support group address: | CLAPA – The Cleft Lip And Palate Association Website: www.clapa.com |
Annual case load
| Cleft palate: | 48 |
| Pierre Robin: | 13 |
| Cleft lip (CL) Unilateral (UCL): | 24 |
| Bilateral (BCL): | 12 |
| Number of syndromic cases: | About 16-17 cases per year in the various syndromes listed on the attached. |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | Lip Repair: 3 months; Palate Repair: 6 – 9 months; ABG: 8y |
| Complete BCLP: | Lip Repair: 3 months; Palate Repair: 6 – 9 months; ABG: 8y |
| Isolated CP: | 6 – 9 months |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| What record taking protocol is used: | Birth, 5 years, 10 years (include types of records taken and include note about craniofacial society guidance) |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | All |
| Speech and language therapy costs: | All |
| Comments on the service provision: | All services provided by NHS throughout life |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | Cleft Team - Various - Various |
Current research activity and data collection
| Type(s) of software used: | Excel, Access, Word, SymNose |
| Participation in inter-centre studies: | Yes |
| Details of studies: | Tri-Centre: West Midlands, South WalesSouth West, Spires |
| Participation in other collaborations (projects): | Yes |
| Details of projects: | Cleft Care UK, TOPS Trial, Cleft Collective |
| Research grant funding received: | Yes |
| Details of funding: | Cleft Care UK, TOPS Trial |
| Willing to share Powerpoint presentations: | Yes |
EU Biobank
Stored CLP DNA samples available for use in future studies:
| Number for CP: | We are unaware of any samples stored in Birmingham |
| Number for CLP: | We are unaware of any samples stored in Birmingham |
| Other CFA: | We are unaware of any samples stored in Birmingham |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
| Laboratory genetics/genomics research: | Yes |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | Craniofacial Society of Great Britain and Ireland www.cfsgbi.org |