Volgograd Cleft Center

Principle contact details

Contact name:Dr. Irina Fomenko
Address:Volgograd City Hospital #1
ul. Kirova, house 10
Volgograd, Russia 400021
Country:Russia
Email:fomenira@mail.ru

Other team members

Surgeon:1.Irina Fomenko - maxillofacial surgery 2. Vitaliy Muchin -plastic and maxillofasial surgery
Speech therapist:Tatiana Zveraeva
Orthodontist:Elena Filimonova
Clinical geneticist:Galina Listopad
Otolaryngologist:Natalia Smagina
Specialist nurse:Irina Shukova
Psychologist:Alla Zahurdaeva
Other:Surgeon Vera Shishkina, Angela Kasatkina, Vitaliy MuchinAnesthiologist Dr. L. KalganovaDr. ophthalmologist Dr. Irina Krasukova
Patient follow up:dr. Irina Fomenko

Support group

Support group contact name:Irina Lazovskaa - +7 9173381507Konstantin Vihlancev +7 903 3731025Anna Vazmina +79377042820

Annual case load

Cleft palate:16
Pierre Robin:4
Cleft lip (CL) Unilateral (UCL):12
Bilateral (BCL):4

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:From 3 months
Complete BCLP:From 3 months
Isolated CP:9 - 12 months

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?
Yes

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:Part
Speech and language therapy costs:Part

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:Dr. Irina Fomenko Surgeon, MD, associate professor, head of department of pediatric dentistry Volgograd Medical University? Head of Cleft Center

Dr. Elena Filimonova Orthodontist PhD, deputy chief physician

Current research activity and data collection

Type(s) of software used:Excel
Participation in other collaborations (projects):Yes
Details of projects:Smiletrain partner since 2009
Published research papers:Yes
Details of publications:Russian magazines: "Pediatric Dentistry and Prevention", "Russian dentistry", "Bulletin of Peoples' Friendship University"
Research grant funding received:Yes
Details of funding:Smiletrain grant
Willing to share Powerpoint presentations:Yes

EU Biobank

Stored CLP DNA samples available for use in future studies:

Number for CP:NO
Number for CLP:NO
Other CFA:NO

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:Moscow Children's Center of Oral and Maxillofacial Surgery
Federal Center for treatment of children with congenital disorders of the face at the Moscow Medical and Dental University

Useful websites or links

Useful websites or links:http://www.nuk-baby.ru/

Total number of cases per annum

Total cases per annum:50