Servico de Cirugia Infantil Hospital Universitario de Cruces Osakidetza – Servicio Vasco de Salud
Principle contact details
| Contact name: | CARMEN PRADO |
| Address: | SERVICIO DE CIRUGÍA INFANTIL HOSPITAL UNIVERSITARIO DE CRUCES PLAZA DE CRUCES SN 48390 BARAKALDO, BIZKAIA, SPAIN |
| Country: | Spain |
| Telephone: | 946006342 |
| Email: | pradomc@gmail.com |
Other team members
| Surgeon: | NAGORE SOLAETXE, ESTÍBALIZ SOLÓRZANO. |
| Speech therapist: | NIEVES PÉREZ |
| Orthodontist: | RAÚL DÍEZ, RAÚL DÍEZ Jr. |
| Clinical geneticist: | BLANCA GENER |
| Otolaryngologist: | JUÁN MIRÓ, CARMEN FERNÁNDEZ, JOSE ANTONIO MUNICIO |
| Specialist nurse: | ROMÁN DE CELIS |
| Psychologist: | CRISTINA INIESTA |
| Other: | JOAN BRUNSÓ (MAXILLOFACIAL SURGEON) |
| Patient follow up: | CARMEN PRADO |
Support group
| Support group address: | ASPANIF JUNKAL ALMAJANO Telephone: 696 34 99 75 E-mail: aspanif@gmail.com Website: blog.aspanif.org |
Annual case load
| Cleft palate: | 17 |
| Pierre Robin: | 4 |
| Cleft lip (CL) Unilateral (UCL): | 10 |
| Bilateral (BCL): | 3 |
| Number of syndromic cases: | Pierre Robin Syndrome, Velocardiofacial Syndrome (VCFS), Fetal Alcohol Syndrome (FAS), Stickler Syndrome, Opitz Syndrome, Treacher Collins Syndrome, Van der Woude Syndrome. |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | Lip Surgery (4 months), Palate surgery: -Wide: Velum (6 months) + Hard (12 months). ………………-Narrow: Complete Closure (6 months). |
| Complete BCLP: | Presurgical Orthopedics, Lip Surgery One Stage (6 months) Palate surgery: -Wide- Velum (9 months) + Hard (12 months). ……………… -Narrow- Complete Closure (9 months). |
| Isolated CP: | Palate surgery: -Wide- Velum (6 months) + Hard (12 months). ……………… -Narrow- Complete Closure (6 months). |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | Part |
| Speech and language therapy costs: | Part |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | CARMEN PRADO - SURGERY - NAGORE SOLAETXE - SURGERY - ESTÍBALIZ SOLORZANO - SURGERY - |
Current research activity and data collection
| Type(s) of software used: | Word, Excel |
| Published research papers: | Yes |
| Details of publications: | Guía de fisuras labiopalatinas. Una patología crónica. |
| Willing to share Powerpoint presentations: | Yes |
EU Biobank
Stored CLP DNA samples available for use in future studies:
| Number for CP: | 100 |
| Number for CLP: | 80 |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
| Laboratory genetics/genomics research: | Yes |
| Animal models research: | Yes |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | SOCIEDAD ESPAÑOLA DE FISURAS FACIALES (SOCEFF) Spanish Society of Facial Cleft ALEJANDRO RIVERA soceff@soceff.org www.soceff.org |
Useful websites or links
| Useful websites or links: | www.soceff.org blog.aspanif.org |