Hacettepe University Faculty of Medicine Dept. of Plastic Reconstructive and Aesthetic Surgery Craniomaxillafacial Team

Principle contact details

Contact name:Proff. Figen Özgur
Address:HACETTEPE UNIVERSITY FACULTY OF MEDICINE DEPARTMENT OF PLASTIC RECONSTRUCTIVE AND AESTHETIC SURGERY
Country:Turkey
Telephone:90-312-3051762; 90-312-3051797
Email:figenozgur@gmail.com

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Other team members

Surgeon:Ass. Proff. Ersoy Konas , ersoykonas@gmail.com
Speech therapist:Ass. Proff. Maviş Kayıkçı PhD
Orthodontist:Ass. Proff. Müge Aksu DDS PhD.
Otolaryngologist:Gamze Atay M.D.
Psychologist:Ciğdem Kirazlı
Other:Ass. Proff. Esra Yücel (speech and language development)
Patient follow up:Cleft Council (Composed of all Cleft Team Members) under direction of two surgeons

Support group

Support group address:None

Annual case load

Cleft palate:55
Pierre Robin:7
Cleft lip (CL) Unilateral (UCL):51
Bilateral (BCL):12
Number of syndromic cases:7
Treachers collin synd.
Dandy Walker synd.
Mallpush Synd.
Orofasio digital synd
Trizomi 10q & 18q
Patau synd. (tri 13)

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:Millard: 2-4 mounths for lip, V-Y Push Back –Furlow : 6-9 mounths for the palate
Complete BCLP:Millard…-Mulliken: 2-4 mounths for lip , V-Y Push Back –Furlow : 6-9 mounths
Isolated CP:V-Y Push Back –Furlow : 6-9 mounths

Record collection protocol

Are records routinely collected at specific ages?Yes
What record taking protocol is used:1) Prenatal (If possible) or birth
2)1-4 Mounths
3)6-9Mounths
4)1 Year
5)1,5Years
6)2Years
7)4Years
8)5 Years
9)7-12 Years
10)13-18 Years

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:Figen Özgür, Ersoy Konas - PRS - All

Müge Aksu - Orthodontics - All

Maviş Kayıkçı - Speech Therapist - All

Esra Yücel, Gamze Atay - Speech Terapist and ENT - All

Çiğdem Kirazlı - Psycologist - All

Non-clinical and laboratory research

Non-clinical and laboratory team members who are or would like to be involved in clinical research:

Member details:Figen Özgür, Ersoy Konas - PRS - All

Müge Aksu - Orthodontics - All

Maviş Kayıkçı - Speech Therapist - All

Current research activity and data collection

Type(s) of software used:Access
Published research papers:Yes
Details of publications:Gursu, K.G., [Classification of cleft lip and palate and their treatment]. Istanbul Univ Dishekim Fak Derg, 1969. 3(1): p. 58-69.
2. Mavili, E., et al., Three cases of oblique facial cleft: etiology, tomographic evaluation and reconstruction. Clin Dysmorphol, 1992. 1(4): p. 229-34.
3. Mavili, E., A. Kayikcioglu, and G. Gursu, Modified use of gate flap for the reconstruction of the lower lip. Eur J Surg Oncol, 1993. 19(4): p. 327-31.
4. Ozgur, F.F., O. Kocabalkan, and K.G. Gursu, Tissue expansion in median facial cleft reconstruction: a case report. Int J Oral Maxillofac Surg, 1994. 23(3): p. 137-9.
5. Kapucu, M.R., et al., The effect of cleft lip repair on maxillary morphology in patients with unilateral complete cleft lip and palate. Plast Reconstr Surg, 1996. 97(7): p. 1371-5; discussion 1376-8.
6. Mavili, E. and M. Akyurek, Use of upper lip flap for correction of nostril stenosis. Otolaryngol Head Neck Surg, 1999. 121(6): p. 840-1.
7. Ozgur, F. and D. Tuncah, Acquired clefting as a consequence of palate infection. Plast Reconstr Surg, 1999. 104(6): p. 1934.
8. Ozgur, F., D. Tuncali, and A. Kayikcioglu, Securing the nostril retainer. Plast Reconstr Surg, 1999. 104(3): p. 882.
9. Ozgur, F., D. Tuncali, and A. Kayikcioglu, Securing the nostril retainer. Plast Reconstr Surg, 1999. 103(4): p. 1328.
10. Ozgur, F. and G. Tuncbilek, Bilateral congenital pits of the upper lip. Ann Plast Surg, 2000. 45(6): p. 658-61.
11. Ozgur, F., G. Tuncbilek, and A. Cila, Evaluation of velopharyngeal insufficiency with magnetic resonance imaging and nasoendoscopy. Ann Plast Surg, 2000. 44(1): p. 8-13.
12. Tuncbilek, G., F. Ozgur, and E. Belgin, Audiologic and tympanometric findings in children with cleft lip and palate. Cleft Palate Craniofac J, 2003. 40(3): p. 304-9.
13. Marazita, M.L., et al., Genome-scan for loci involved in cleft lip with or without cleft palate in consanguineous families from Turkey. Am J Med Genet A, 2004. 126A(2): p. 111-22.
14. Ozgur, F., E. Sonmez, and G. Tuncbilek, Cleft lip and cleft palate closure in 13 month-old female with Epidermolysis Bullosa. J Craniofac Surg, 2005. 16(5): p. 843-7.
15. Tuncbilek, G., E. Konas, and F. Ozgur, A salvage procedure in cleft palate repair: suturing nasal mucosa directly to palatine process. Cleft Palate Craniofac J, 2007. 44(3): p. 233-4.
16. Ozgur, F. and H. Ozdemir, Long-term impaction of a foreign body in the hard palate. J Craniofac Surg, 2008. 19(3): p. 826-8.
17. Konas, E., et al., Congenital bony syngnathia with unilateral palatal shelf and soft palate agenesis. J Craniofac Surg, 2010. 21(5): p. 1645-7.
18. Calis, M., E. Konas, and F. Ozgur, Unusual foreign body impaction in the palate: plastic screw cap. J Craniofac Surg, 2011. 22(6): p. 2430.
19. Ozgur, F. and H.O. Kamburoglu, A Very Rare Cause of Asymmetric Velopharyngeal Incompetence: Unilateral Palate Hypoplasia. Cleft Palate Craniofac J, 2011.

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes
Animal models research:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:Cleft Lip Palate and Craniofacial scientific organisations are organized in conjunction with Turkish Plastic Reconstruction and Aesthetic Surgery Association. Cleft Lip and Palate and Craniomaxillofacial scientific study groups are two scientific study groups of our society.

There is also another attempt to establish a separate association for cleft Lip and Palate .The foundation procedures are an ongoing process.