East & North of Scotland Cleft Service, Royal Hospital for Sick Children, Edinburgh
Principle contact details
| Contact name: | Dr Felicity Mehendale |
| Address: | Felicity Mehendale MS, FRCS, FRCS(Plast) Consultant Cleft & Plastic Surgeon Clinical Lead Cleft Lip & Palate Service, East of Scotland Honorary Senior Clinical Lecturer, University of Edinburgh Royal Hospital for Sick Children, Edinburgh EH9 1LF, UK |
| Country: | United Kingdom |
| Telephone: | +44 (0)131 536 0976 |
| Email: | felicity.mehendale@ed.ac.uk |
| Web address: | Visit website |
Other team members
| Surgeon: | Felicity Mehendale (Plastic Surgery), Duncan Campbell (Maxillofacial Surgery) |
| Speech therapist: | Gillian Cairns, Jan Wilson, June Fair, Natalie Lodge |
| Orthodontist: | Jon Hammond, Grant McIntyre, Colin Larmour, Liz Turbill, Adrian Hart |
| Clinical geneticist: | David FitzPatrick |
| Otolaryngologist: | Nicola Starritt |
| Specialist nurse: | Linda Paton, Katie Phelan, Emily Hanratty, Kirsteen Williams |
| Psychologist: | Carolyn Wesson |
| Other: | Orla Duncan - Changing Faces Practitioner |
Support group
| Support group contact name: | CLAPA UK |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | lip, nose, vomerine flap at 3-5 months, palate repair 4 moths thereafter (Sommerlad technique) |
| Complete BCLP: | bilateral lip, nose, vomerine flaps (conservative) at 3-6 months, palate repair 4 moths thereafter (Sommerlad technique) |
| Isolated CP: | single stage palate repair at 6 months (later if PRS) or if in TOPS trial |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | All |
| Speech and language therapy costs: | All |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | Felicity Mehendale |
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
| Member details: | Felicity Mehendale |
Current research activity and data collection
| Type(s) of software used: | Excel, Word, old Access database |
| Participation in inter-centre studies: | Yes |
| Details of studies: | TOPS Cleft Care UK, Cleft Collective |
| Participation in other collaborations (projects): | Yes |
| Published research papers: | Yes |
| Willing to share Powerpoint presentations: | Yes |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | Craniofacial Society of Great Britain and Ireland |
Total number of cases per annum
| Total cases per annum: | 45 - 55 |