Center for Orofacial Clefts, Department of Maxillofacial and Oral Surgery, University Hospital Ljubljana
Principle contact details
| Contact name: | Vesna Koželj, Department of Maxillofacial and Oral Surgery |
| Address: | Zaloška c. 2, 1525 Ljubljana |
| Country: | Slovenia |
| Telephone: | '+386 1 522 42 75 |
| Email: | vesna.kozelj@mf.uni-lj.si |
Other team members
| Surgeon: | Vesna Koželj, Andreja Eberlinc, Miha Ko?ar |
| Speech therapist: | Nataša Prebil |
| Orthodontist: | Martina Drevenšek, Alja Meh |
| Clinical geneticist: | Borut Peterlin |
| Otolaryngologist: | Irena Ho?evar, Maja Šereg |
| Specialist nurse: | Tatjana Šabec |
| Psychologist: | Petra Bav?ar |
| Patient follow up: | Vesna Koželj |
Support group
| Support group contact name: | It was founded 10 years ago, but stopped their activities |
Annual case load
| Cleft palate: | 18 |
| Pierre Robin: | 4 |
| Cleft lip & palate (CLP) Unilateral (UCLP): | 8 |
| Bilateral (BCLP): | 3 |
| Bilateral (BCL): | 3 |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | 6 m: lip Tennison, 12 m: intravelar veloplasty, 30 m hard palare & gingivoperiopl. of alveolus |
| Complete BCLP: | 6m: lip Manchester, 12-18 m palatoplasty |
| Isolated CP: | 2,5 y modified von Langenbeck |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | All |
| Speech and language therapy costs: | All |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | Vesna Koželj - Surgery - Inter-centre Andreja Eberlinc - Surgery - Cohort studies Martina Drevenšek - Orthodontics - Irena Ho?evar - ENT |
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
| Member details: | Vita Dolžan - Molecular genetics |
Current research activity and data collection
| Type(s) of software used: | Excel, Word, Original program for registration, surgery planning, follow up |
| Participation in inter-centre studies: | Yes |
| Details of studies: | A six-center study on dental casts: Cleft Palate Craniofac J, 2011, doi: 10.159710-190. Comparison Ljubljana – Graz : J Craniomaxillofac Surg 2007; 35:343-349 J Craniomaxillofac Surg 2011; 39:469-74 Comparison Ljubljana – Plovdiv: will be presented at 21st European Congress of Craniomaxillofacial Surgery |
| Published research papers: | Yes |
| Details of publications: | - Cleft Palate Craniofac J 1999; 36: 515-521. - Cleft Palate Craniofac J 2000; 37:26-32 - J Craniomaxillofacial Surg 2000; 28: 201-203. - Cleft Palate Craniofac J 2001; 38: 164-170. - J Laryngol Otol 2006; 120: 276-281. - Plast Reconstr Surg 2007; 120: 738-745. - J Craniomaxillofac Surg 2007; 35:343-349 - J Craniomaxillofac Surg 2011; 39:469-74 - Cleft Palate Craniofac J 2011, doi: 10.159710-146. - Cleft Palate Craniofac J, 2011, doi: 10.159710-190. |
| Research grant funding received: | Yes |
| Details of funding: | Slovene Research Agency |
| Willing to share Powerpoint presentations: | Yes |
EU Biobank
Stored CLP DNA samples available for use in future studies:
| Number for CP: | We have 100 Slovene duo mother child |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
| Laboratory genetics/genomics research: | Yes |
| Animal models research: | Yes |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | No |
Total number of cases per annum
| Total cases per annum: | 35 |