Center for Craniofacial Disorders, Institute of Mother and Child, Warsaw, Poland
Principle contact details
| Contact name: | Prof. Maria Hortis- Dzierzbicka |
| Address: | Institute of Mother and Child, Kasprzaka 17A,Warsaw, Poland |
| Country: | Poland |
| Telephone: | +48 22 3277140 |
| Email: | dr_ahortis@poczta.onet.pl |
Other team members
| Surgeon: | Wlodzimierz Piwowar, Zbigniew Surowiec, Orest szczygielski, |
| Speech therapist: | Malgorzata Budner, Barbara Offert |
| Orthodontist: | Doroita Cudzilo, MalgorzatA Palczynska, Jolanta Kostrzewa |
| Clinical geneticist: | Ewa Obersztyn |
| Otolaryngologist: | Maria Hortis-dzierzbickas (ENTphoniatrics |
| Specialist nurse: | Elzbieta Pilatowska |
| Patient follow up: | No one person has been appointed |
Support group
| Support group address: | do not exist |
Annual case load
| Cleft palate: | over 100 |
| Pierre Robin: | 13 in 2012 |
| Cleft lip (CL) Unilateral (UCL): | 100 - CLP, 56 - UCLP |
| Bilateral (BCL): | 44 |
| Number of syndromic cases: | about 50 |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | 6-12 months of age - One-stage cleft lip, hard and soft palate repair |
| Complete BCLP: | 6-12 months of age - One-stage bilateral cleft lip, hard and soft palate repair |
| Isolated CP: | 6-12 months of age - One-stage hardf and soft palate repair |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | All |
| Speech and language therapy costs: | All |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | Wlodzimierz Piwowar, Zbigniew Surowiec - surgery - Cohort studies, clinical trials Elzbieta Radkowska - Speech therapy - Like above Dorota Cudzilo, Jolanta Kostrzewa, Malgorzata Palczynska - orthodontics - Like above Maria Hortis-Dzierzbicka - ENTphoniatrics - Cohort studies, clinical trials, Intercenter comparisons |
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
| Member details: | Ewa Obersztyn - genetics |
Current research activity and data collection
| Type(s) of software used: | Word, excel, other |
| Participation in inter-centre studies: | Yes |
| Details of studies: | Prof. M. Hortis-Dzierzbicka: Eurocleft and Eurocran intercenter studies |
| Participation in other collaborations (projects): | Yes |
| Details of projects: | Prof. M. Hortis-Dzierzbicka : contributor to Eurocran…Speech Project, CLISPI Project, member of Task Force 5 Speech Assessment…for Int Congress in , 2013 |
| Published research papers: | Yes |
| Details of publications: | multiple |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
| Laboratory genetics/genomics research: | Yes |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | No |