Lippen-Kiefer-Gaumenspalten-Zentrum des Universitätsklinikums Erlangen (Cleft Center of Erlangen-Nurember University Hospital)
Principle contact details
| Contact name: | Priv.-Doz. Dr. Dr. Florian Stelzle |
| Address: | Glueckstrasse 11, D-91054 Erlangen Germany |
| Country: | Germany |
| Telephone: | #49-9131-8534201 |
| Email: | florian.stelzle@uk-erlangen.de |
| Web address: | Visit website |
Other team members
| Surgeon: | Prof. Dr. Dr. Dr. h. c. Friedrich W. Neukam (maxillofacial surgeon), Mr. Prof. Dr. Dr. Emeka Nkenke (maxillofacial surgeon), PD Dr. Dr. Florian Stelzle (maxillofacial surgeon), Christos Iliopoulos (fellow maxillofacial surgery) |
| Orthodontist: | Mrs Prof. Dr. med. dent. Ursula Hirschfelder |
| Clinical geneticist: | Prof. Dr. med. André Reis |
| Otolaryngologist: | Prof. Dr. med. Dr. rer. nat. Ulrich Eysholdt |
| Other: | Paediatrics: Prof. Dr. med. Wolfgang Rascher |
Annual case load
| Cleft palate: | 50 new cases on average |
| Pierre Robin: | 1-2 cases on average |
| Cleft lip (CL) Unilateral (UCL): | 12 on average |
| Bilateral (BCL): | 13 on average |
| Number of syndromic cases: | 1-2 on average |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | 3rd - 6th monath: lip repair (possibly also ear tube placement if needed); 12 month: palatal repair |
| Complete BCLP: | 5th-6th year: minor rhinoplasty if needed (possibly also velopharyngoplasty if needed) |
| Isolated CP: | 8th - 10th year: maxillary osteoplasty if needed; adolescnece: corrective operations (orthognathics, scar correction, facial plastic surgery etc.) |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | All |
| Speech and language therapy costs: | All |
| Comments on the service provision: | via health insurance |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | Stelzle F - discipline: OMFS - research activity (clinical) Iliopoulos C - discipline: OMFS - research activity (clinical) |
Current research activity and data collection
| Type(s) of software used: | Microsoft office suite Documentation software for the nationawide cleft documentation by the German Cleft Palate Craniofacial Association (GCPA) |
| Participation in inter-centre studies: | Yes |
| Details of studies: | Nationawide cleft documentation by the German Cleft Palate Craniofacial Association (GCPA) |
| Participation in other collaborations (projects): | Yes |
| Details of projects: | Local interdisciplinary projects with orthodontics and phoniatrists concerning automatic speech assessment on children with clefts (granted by the German Research Foundation) |
| Published research papers: | Yes |
| Details of publications: | available in Pubmed (authors: Neukam FW, Nkenke E, Stelzle F) |
| Research grant funding received: | Yes |
| Details of funding: | DFG (Deutsche Forschungsgemeinschaft) ELAN (Erlanger Leistungsbezogene Anschubfinanzierung und Nachwuchsförderung) |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
| Laboratory genetics/genomics research: | Yes |
| Animal models research: | Yes |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | www.ak-lkg.de |
Useful websites or links
| Useful websites or links: | e.g. WHO craniofacial anomalies http:www.who.intgenomicsaboutencfa8-anx.pdf Selbsthilfevereinigung für Lippen-Gaumen-Fehlbildungen e.V. - Wolfgang Rosenthal - Gesellschaft www.lkg-selbsthilfe.de |