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Patient groups

We are currently developing this list of cleft support groups in Europe which will in time provide descriptions of activities and full contact details. If your group is not included here please contact Gareth Davies at Gareth@ecoonline.org. We need your help to get a complete picture and to provide new families of babies born with clefts the support they need throughout Europe.

Belgium (1)

  1. Belgian Association for Congenital Facial Defects, VAGA vzw

Bulgaria (1)

  1. Association of the Patients with Facial Anomalies and their Parents (ALA)

Denmark (1)

  1. Landsforeningen Laebe-Ganespalte (LLG)

Finland (1)

  1. SUHUPO

Germany (1)

  1. Selbsthilfevereingung fur Lippen-Gaumen-Fehlbildungen e.V. -Wolfgang Rosenthal Gesellschaft

Ireland (1)

  1. Cleft Lip and Palate Association of Ireland

Netherlands (2)

  1. BOSK
  2. Laposa

Norway (1)

  1. Leppe - Ganespalte Foreningen

Spain (5)

  1. AFICAVAL - ASOCIACIÓN DE FISURADOS Y LABIO LEPORINO DE CASTELLÓN, VALENCIA Y ALICANTE.
  2. AFILAPA - Asociación de Afectados de Fisura Labio-Palatina
  3. ALAFINA - Asociacion de familiares y afectados/as de labio leporino y fisura palatal de Navarra
  4. ASPANIF - asociación de familias que tienen niños con fisuras labiales es el Pais Vasco
  5. Associació FÍCAT - Associació de Fissurats de Catalunya

Sweden (1)

  1. LKG-fareningen in Stockholm

United Kingdom (1)

  1. Cleft Lip and Palate Association