South Thames Cleft Service, Guy’s and St Thomas’ NHS Foundation Trust

Principle contact details

Contact name:Emma Southby
Address:St Thomas' Hospital, Lambeth Palace Road, London, SE1 9EH
Country:United Kingdom
Telephone:442 071 881 321

Other team members

Surgeon:1. Mr Piet Haers - Cleft Surgeon (Maxiofacial). 2. Miss Norma Timoney - Cleft Surgeon (Plastics), 3. Mr Duncan Atherton - Cleft Surgeon (Plastics)
Speech therapist:Zoe Jordan
Orthodontist:Mr Alex Cash, Mrs Sarah Good
Otolaryngologist:Mr Ian Hore
Specialist nurse:Emma Southby - Lead Nurse, Sue Butcher, Giselle Murphy, Ann Young, Wendy Tuohy, Sally Moran, Natalie Morgan
Psychologist:Kate Le Marechel, Suzannah Jenner

Support group

Support group contact name:CLAPA South London Branch

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:Lip repair 3 months, Palate repair 6-9 months
Complete BCLP:Lip Repair 3 months, Palate repair 6-9 months
Isolated CP:Palate repair 6-9 months

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Current research activity and data collection

Participation in inter-centre studies:Yes
Details of studies:Cleft Collective
Participation in other collaborations (projects):Yes
Published research papers:Yes
Willing to share Powerpoint presentations:Yes

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:Craniofacial Society of Great Britain and Ireland

Total number of cases per annum

Total cases per annum:140