South Thames Cleft Service, Guy’s and St Thomas’ NHS Foundation Trust
Principle contact details
| Contact name: | Emma Southby |
| Address: | St Thomas' Hospital, Lambeth Palace Road, London, SE1 9EH |
| Country: | United Kingdom |
| Telephone: | 442 071 881 321 |
| Email: | emma.southby@gstt.nhs.uk |
Other team members
| Surgeon: | 1. Mr Piet Haers - Cleft Surgeon (Maxiofacial). 2. Miss Norma Timoney - Cleft Surgeon (Plastics), 3. Mr Duncan Atherton - Cleft Surgeon (Plastics) |
| Speech therapist: | Zoe Jordan |
| Orthodontist: | Mr Alex Cash, Mrs Sarah Good |
| Otolaryngologist: | Mr Ian Hore |
| Specialist nurse: | Emma Southby - Lead Nurse, Sue Butcher, Giselle Murphy, Ann Young, Wendy Tuohy, Sally Moran, Natalie Morgan |
| Psychologist: | Kate Le Marechel, Suzannah Jenner |
Support group
| Support group contact name: | CLAPA South London Branch |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | Lip repair 3 months, Palate repair 6-9 months |
| Complete BCLP: | Lip Repair 3 months, Palate repair 6-9 months |
| Isolated CP: | Palate repair 6-9 months |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | All |
| Speech and language therapy costs: | All |
Current research activity and data collection
| Participation in inter-centre studies: | Yes |
| Details of studies: | Cleft Collective |
| Participation in other collaborations (projects): | Yes |
| Published research papers: | Yes |
| Willing to share Powerpoint presentations: | Yes |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | Craniofacial Society of Great Britain and Ireland http://www.craniofacialsociety.org.uk/ |
Total number of cases per annum
| Total cases per annum: | 140 |