SEnter for leppe-kjeve-ganespalte Bergen

Principle contact details

Contact name:Eli Lisbeth Brinck
Address:Senter for leppe-kjeve-ganespalte
Tannhelsetenesta kompetansesenter Vest- Hordaland
Pb. 2354 Hansaparken
5828 Bergen

Other team members

Surgeon:Hallvard Vindenes
Speech therapist:Nina Helen Pedersen
Orthodontist:Paul Kåre Sæle
Patient follow up:The Bergen CLP-team

Support group

Support group contact

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:Lip 3 months
Complete BCLP:Lip 3 months
Isolated CP:Palate 12 months

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Current research activity and data collection

Type(s) of software used:Excel, Word
Participation in inter-centre studies:Yes
Details of studies:TOPS, Scandcleft
Participation in other collaborations (projects):Yes
Details of projects:Reborn
Research grant funding received:Yes
Details of funding:Quality insurance
Willing to share Powerpoint presentations:Yes

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes

Total number of cases per annum

Total cases per annum:50