Scientific-Practical Center for medical help to children with craniofacial anomalies
Principle contact details
| Contact name: | Prityko Andrey |
| Address: | 119620 Russia, Moscow, Aviatorov street 38. |
| Country: | Russia |
| Telephone: | 8-910-409-43-22 |
| Email: | gonchakov@mail.ru |
| Web address: | Visit website |
Other team members
| Surgeon: | Gonchakov Gennady, maxillofacial surgeon, Gonchakova Svetlana, maxillofacial surgeon, Kachkaeva Elena ENT, Gonchakov Dmitry, maxillofacial surgeon, Borzova Anna, maxillofacial surgeon, Merkulova July, maxillofacial surgeon, Saidova Gulshot maxillofacial surgeon |
| Speech therapist: | Dikman Ksenia, Belichenko Anna |
| Orthodontist: | Kagramanova Marika |
| Clinical geneticist: | Mesheriakova Tatiana, Mutovin Gennady, Gilina Svetlana |
| Otolaryngologist: | Kachkaeva Elena |
| Specialist nurse: | Razmahova Ludmila |
| Other: | Pechnikova July - pediatrician, Afonin Dmitry - anesthesiologist, Cherniakov Michail - anesthesiologist, Grigorieva Larisa - anesthesilogist. |
| Patient follow up: | Gonchakov Gennady, Gonchakova Svetlana |
Support group
| Support group address: | ulybki.mybb.ru |
Annual case load
| Cleft palate: | 200-250 |
| Pierre Robin: | 50-60 |
| Cleft lip (CL) Unilateral (UCL): | 120-140 |
| Bilateral (BCL): | 50-60 |
| Number of syndromic cases: | van der Wood syndrom - 3-10 patients Di George syndrom - 5-10 patients Downsyndrom - 3-4 patients Opitz syndrom 1-2 patients |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | Cleft lip repair - 1-4 months, veloplasty - 6-8 months, uranoplasty - 12-14 months |
| Complete BCLP: | bilateral cleft repair - 3-4 months, veloplasty - 6-8 months, uranoplasty - 12 -14 months |
| Isolated CP: | veloplasty - 6-8 months, uranoplasty - 12-14 months or uranoveloplasty 6-8 months |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | Part |
| Orthodontic costs: | Part |
| Speech and language therapy costs: | Part |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | Gonchakov Gennady - maxillofacial surgeon - all research activity Gonchakova Svetlana - maxillofacial surgeon - all research activity Gonchakov Dmitry - maxillofacial surgeon - all research activity Borzova Anna - maxillofacial surgeon - all research activity Merkulova July - maxillofacial surgeon - all research activity Pechnikova July - pediatrician - all research activity Dikman Ksenia - speech-pathologist - all research activity Kagramanova Marika -orthodontist - all research activity Kachkaeva Elena - ENT -all research activity Mesheriakova Tatiana - genetic -all research activity |
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
| Member details: | Abramov A. - genetics Markova S. genetics Zarubina B - genetics Poliakova N - genetics |
Current research activity and data collection
| Type(s) of software used: | Word, Excel |
| Published research papers: | Yes |
| Details of publications: | 1. The surgical correction of cleft palate in children of up to 1 year old. British Journal of Oral and Maxillofacial Surgery. – 1998. – Vol. 36. – N 3. – P. 220. 2. Velopharyngeal function for speech after the Frolova primary palatoplasty. Williams W. N., Bzoch K. R., Dixon-Wood V., Seagle M. B., Nackashi J. A., Marks R. G., Frolova L. E., Serova Y., Gonchakov G. V., Scheslavsky S. , Schemelkova T., Zagirova A. Cleft Palate – Craniofacial J. – 1998. – Vol. 35. – N 6. – P. 481-488. 3. Otologic and audiologic status of Russian children with cleft lip and palate. Seagle M. B., Nackashi J. A., Kemker F. J., Marks R. G., Williams W. N., Frolova L. E., Gonchakov G. V., Scheslavsky S. Cleft Palate- Cranuofacial J. – 1998. – Vol. 35. – N 6. – P. 495- 499. 4. Using the drug «Wobenzym» in bone grafting of congenital alveolar clefts in children. Prityko A., Gonchakov G., Lopatin A. J. Craniomaxillofacial Surgery. – 1998. – Vol. 26. – Suppl. 1. – P. 106. 5.The palatal ulcers in cleft lip and palate infants. Gonchakov G. V., Gonchakova S. G. British J. Oral and Maxillofacial Surgery. – 2000. – Vol. 38. – N. 4. – P. 381. 6. Bone grafting alveolar clefts using calvarial split thickness autografts in bilateral complete cleft lip and palate patients. Prityko A. G., Belchenko V. A., Gonchakov G, V., Gonchakova S, G., Kaurova L. A. J. CranioMaxillofacial Surgery. – 2000. – Vol. 28. – Supplement 3. – P. 20. 7. Speech outcome of cleft palate children treated up to 1 year of age. Gonchakov G. V. J. CranioMaxillofacial Surgery. – 2000. – Vol. 28. – Supplement 3. – P. 111. 8. Cleft palate surgery treatment up to 1 year. Gonchakov G. V. J. CranioMaxillofacial Surgery. – 2000. – Vol. 28. – Supplement 1. – P. 29. 9. Alveolar bone grafting using cancellous iliac and calvarial split thickness bone grafts. Belchenko V. A., Gonchakov G. V., Prityko A. G., Gonchakova S. G. J. CranioMaxillofacial Surgery. – 2000. – Vol. 28. – Supplement 1. – P. 5-6. We have also a lot of publication in Russia medical Journals. |
| Willing to share Powerpoint presentations: | Yes |
EU Biobank
Stored CLP DNA samples available for use in future studies:
| Number for CP: | - |
| Number for CLP: | - |
| Other CFA: | - |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
| Laboratory genetics/genomics research: | Yes |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | - |
Useful websites or links
| Useful websites or links: | - |
Total number of cases per annum
| Total cases per annum: | 365-400 |