North West North Wales Cleft Lip and Palate Network
Principle contact details
| Contact name: | Yvette Edwards |
| Address: | Yvette Edwards North West North Wales Cleft Lip and Palate Network Manager Room C3 DV 123 3rd Floor Royal Manchester Children's Hospital Oxford Road M13 9WL |
| Country: | United Kingdom |
| Telephone: | 0161 701 8605 |
| Email: | yvette.edwards@cmft.nhs.uk |
| Web address: | Visit website |
Other team members
| Surgeon: | Simon van Eeden |
| Speech therapist: | Melanie Bowden |
| Orthodontist: | Susana Dominguez Gonzalez |
| Clinical geneticist: | Jill Clayton-Smith |
| Specialist nurse: | Helen Robson |
| Psychologist: | Paul Abeles |
| Other: | Claire Richardson - CMFT Clinic Co-ordinatorHelen McCormick - AHFT Clinic Co-ordinatorWe have Centre Leads at each centre Haydn Bellardie and Susana Dominguez Gonzalez both consulatnt orthodontists |
| Patient follow up: | Simon van Eeden, Clinical Director |
Annual case load
| Number of syndromic cases: | Yes |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| What record taking protocol is used: | The service follows NHS England service specifications and CRANE outcomes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | All |
| Speech and language therapy costs: | All |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | All clinical staff are involved in approved research |
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
| Member details: | N/A |
Current research activity and data collection
| Type(s) of software used: | All above |
| Participation in inter-centre studies: | Yes |
| Details of studies: | Annual quad audit |
| Participation in other collaborations (projects): | Yes |
| Published research papers: | Yes |
| Research grant funding received: | Yes |
| Details of funding: | Cleft Collective TOPS |
EU Biobank
Stored CLP DNA samples available for use in future studies:
| Number for CP: | Only part of approved reseach |
| Number for CLP: | Only part of approved reseach |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | Craniofacial Society GBI |
Total number of cases per annum
| Total cases per annum: | 150 |