Malmoe cleft team

Principle contact details

Contact name:Magnus Becker
Address:Department of Pastic and Reconstructive Surgery
University Hospital SUS
202 05 Malmö

Map of location

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Other team members

Surgeon:MAgnus Becker (Plasticsurgeon)
Speech therapist:Kristina Klintö, Maria Sporre, Jan Olof Malmborn
Orthodontist:Ingemar Swanholm
Clinical geneticist:Maria Soller
Otolaryngologist:Malin Josefsson
Specialist nurse:Annika Uwemark
Psychologist:Kerstin Österlind
Patient follow up:Plasticsurgery Orthodontic

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:3 month
Complete BCLP:3 month
Isolated CP:6 to 12 month

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?
What record taking protocol is used:Swedish National Quality register for clefts

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Current research activity and data collection

Participation in inter-centre studies:Yes
Details of studies:TOPS, NIH founded
Participation in other collaborations (projects):Yes
Published research papers:Yes
Research grant funding received:Yes
Willing to share Powerpoint presentations:Yes

EU Biobank

Stored CLP DNA samples available for use in future studies:

Number for CP:No
Number for CLP:No
Other CFA:No

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:Yes

Total number of cases per annum

Total cases per annum:45