Leeuwarden/Friesland

Principle contact details

Contact name:Dr K. Heijdenrijk
Address:Dept. of Plastic and reconstructive surgery
Henri Dunantweg 2
8934AD Leeuwarden
The Netherlands
Country:Netherlands
Telephone:+31(o)582866141
Email:schisis@ZNB.nl
Web address:Visit website

Map of location


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Other team members

Surgeon:CM Mou√ęs MD PhD, plastic surgeon. D van Dam MD, plasticsurgeon
Speech therapist:JM Dijkstra Putkamer; J Krooshof
Orthodontist:BD van der Meulen
Clinical geneticist:H Veenstra -Knol
Otolaryngologist:N. Reuchlin, MD
Psychologist:H. van 't Hoff, orthopedagoge; N Stellema, MMW
Other:K. Heijdenrijk, MD PhD, Maxillofacial surgeonR. Hovens, MD, special dentistA. Kamps, MD PhD, pediatricRJ Sol, AudiologyK.Koster, med fotogr.
Patient follow up:Schisis Team Friesland

Support group

Support group address:BOSK Laposa

Annual case load

Cleft palate:5 in 2012
Pierre Robin:6
Cleft lip (CL) Unilateral (UCL):12
Bilateral (BCL):10
Number of syndromic cases:+- 14
Goldenhar
VCF
Apert
Di George

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?
Yes
What record taking protocol is used:registration is conform the Dutch registrysystem

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Current research activity and data collection

Type(s) of software used:word, acces
Participation in inter-centre studies:Yes
Details of studies:rotterdamgroningen use of Foliaticaccid
NijmegenFriesland outcomstudies
Published research papers:Yes
Details of publications:Facial reconstruction on the abnormal skull model of a living patient.
KGH van der Wal, RAH Neave, JJ van der Biezen and B van der Kuijl.
Cleft Palate Craniof J 2001; 38: 317-322.

Does the interaction between maternal folate intake and the methylenetetrahydrofolate reductase polymorphisms affect cleft with or without cleft palate risk.
Rooij van IALM, Vermeij-Keers C, Kluijtmans LAJ, Ocke MC, Zielhuis GA, Goorhuis-Brouwer SM, Biezen vanderJJ, Kuipers-Jagtman AM, Steegres Theunissen RPM.
Am J of Epidermiology 2003;157:583-591
ICBD Award: Top of the week paper on birth defects etc
The use of buccal fatpads in palatal
reconstruction.
Yu Lan khouw, KGH van der Wal and JJ van der Biezen
J Oral Maxfacialsurg 2004; 62: 749-51.
Inferior-based pharyngeal flap for correction of stress velopharygeal incompetence in musicians: case reports and revieuw of the literature.
Visser A, van der Biezen JJ.
J of Plastic, Reconstructive and Aesthetic Surgery (2012),
65, 960-962.
doi:10.1016j.bjps.2011.11.49

EU Biobank

Stored CLP DNA samples available for use in future studies:

Number for CP:?
Number for CLP:?
Other CFA:?

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:NVSCA

Total number of cases per annum

Total cases per annum:30-40