Höpital Femme Mere Enfant

Principle contact details

Contact name:Christian Paulus
Address:59 boulevard Pinel
69500 Bron
Web address:Visit website

Other team members

Speech therapist:1
Clinical geneticist:1
Specialist nurse:1
Patient follow up:Christian Paulus

Annual case load

Cleft palate:20
Pierre Robin:10
Cleft lip (CL) Unilateral (UCL):15
Bilateral (BCL):5
Number of syndromic cases:1 vander Woode

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:3 months
Complete BCLP:3 months
Isolated CP:9 months

Record collection protocol

Are records routinely collected at specific ages?Yes
What record taking protocol is used:patients are viewed every year

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:surgeon

Current research activity and data collection

Type(s) of software used:implants
type of feeding
Willing to share Powerpoint presentations:Yes

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:Association Francophone de fentes faciales

Total number of cases per annum

Total cases per annum:40