Department of Plastic Surgery, Sahlgrenska University Hospital, Gothenburg, Sweden

Principle contact details

Contact name:Hans Mark, MD, PhD
Telephone:+46-31-342 7620

Other team members

Speech therapist:Christna Persson, Christina Havstam
Orthodontist:Sara Rizel, Midia Najar Chalien
Specialist nurse:Anna Paganini
Psychologist:Marizela Klajnic
Patient follow up:Hans Mark

Annual case load

Cleft palate:10
Pierre Robin:10
Cleft lip & palate (CLP) Unilateral (UCLP):20
Bilateral (BCLP):10
Number of syndromic cases:20

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:6 months, Soft palate repair and lip and nose plasty
Complete BCLP:6 months, Soft palate repair and lip and nose plasty
Isolated CP:6 months, Soft palate repair

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Current research activity and data collection

Type(s) of software used:Excel
File Maker Pro
Participation in inter-centre studies:Yes
Details of studies:Scand Cleft
Participation in other collaborations (projects):Yes
Published research papers:Yes
Research grant funding received:Yes
Willing to share Powerpoint presentations:Yes

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:SWEDCLEFT

Total number of cases per annum

Total cases per annum:45