CP Team, University Hospital Department of Dentofacial Orthopaedic Clinic SE-581 85 Linköping

Principle contact details

Contact name:Dr A Marcusson
Address:CP Team
University Hospital
Department of Dentofacial Orthopaedic Clinic
SE-581 85 linköping

Map of location

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Other team members

Surgeon:DR Avni Abdiu
Speech therapist:Pia Bodling, Ann-Sofie Taleman
Orthodontist:Agneta marcusson, Gudrun Stälhand
Clinical geneticist:Cecilia Gunnarsson
Otolaryngologist:Anna-Britta Mjönes
Specialist nurse:Kristina Andersson
Psychologist:Tima Sheiakh
Patient follow up:Agneta Marcusson

Annual case load

Cleft palate:20-25
Pierre Robin:212012

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:3-4 month´s lip closure (modified Millard) and if nedded primary rhinoplasty (Mc Comb)
Isolated CP:15-18 months:hard and soft palate closure (Sommerlad)

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:Avni Abdiu
Agneta Marcusson
Gudrun Stålhand
Pia Bodling

Current research activity and data collection

Type(s) of software used:Excel, Word
Participation in other collaborations (projects):Yes
Details of projects:Scandcleft
Published research papers:Yes
Details of publications:Marcusson A
Abdiu A
Berggren A
Ohannessian P
Willing to share Powerpoint presentations:Yes

EU Biobank

Stored CLP DNA samples available for use in future studies:

Number for CP:No
Number for CLP:No
Other CFA:No

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes