CP Team, University Hospital Department of Dentofacial Orthopaedic Clinic SE-581 85 Linköping
Principle contact details
| Contact name: | Dr A Marcusson |
| Address: | CP Team University Hospital Department of Dentofacial Orthopaedic Clinic SE-581 85 linköping Sweden |
| Country: | Sweden |
| Telephone: | +46101038558 |
| Email: | agneta.marcusson@lio.se |
Other team members
| Surgeon: | DR Avni Abdiu |
| Speech therapist: | Pia Bodling, Ann-Sofie Taleman |
| Orthodontist: | Agneta marcusson, Gudrun Stälhand |
| Clinical geneticist: | Cecilia Gunnarsson |
| Otolaryngologist: | Anna-Britta Mjönes |
| Specialist nurse: | Kristina Andersson |
| Psychologist: | Tima Sheiakh |
| Patient follow up: | Agneta Marcusson |
Annual case load
| Cleft palate: | 20-25 |
| Pierre Robin: | 212012 |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | 3-4 month´s lip closure (modified Millard) and if nedded primary rhinoplasty (Mc Comb) |
| Isolated CP: | 15-18 months:hard and soft palate closure (Sommerlad) |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | All |
| Speech and language therapy costs: | All |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | Avni Abdiu Agneta Marcusson Gudrun Stålhand Pia Bodling |
Current research activity and data collection
| Type(s) of software used: | Excel, Word |
| Participation in other collaborations (projects): | Yes |
| Details of projects: | Scandcleft TOPS |
| Published research papers: | Yes |
| Details of publications: | Marcusson A Abdiu A Berggren A Ohannessian P |
| Willing to share Powerpoint presentations: | Yes |
EU Biobank
Stored CLP DNA samples available for use in future studies:
| Number for CP: | No |
| Number for CLP: | No |
| Other CFA: | No |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |