Principle contact details

Address:C/IRUNLARREA s.n, 31008, Pamplona (Navarra) SPAIN

Other team members

Surgeon:Joaquin Garatea (Maxillofacial surgeon) Isabel Quilez (Maxillofacial surgeon)
Speech therapist:Eva Muñoz Yuste
Orthodontist:Beatriz Lahoz; Juan José Los Arcos
Clinical geneticist:Carmen Mendivil
Otolaryngologist:Paloma Rodríguez García
Specialist nurse:Teresa Blasco
Psychologist:Joseba Cerrillo Bilbao
Other:Rehabilitation medicine: Aurelia Mena; Maite Lizarraga
Patient follow up:Joaquin Garatea

Support group

Support group contact

Annual case load

Cleft palate:5
Pierre Robin:0-1
Cleft lip & palate (CLP) Unilateral (UCLP):5
Bilateral (BCLP):1
Cleft lip (CL) Unilateral (UCL):5
Bilateral (BCL):1
Number of syndromic cases:1

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:6 months; Millard II/ 18 months Von Langwenbeck
Complete BCLP:6 Months; Mulliken/ 18 Month Von Langenbeck
Isolated CP:12 months; Von Langenbeck/ Furlow

Record collection protocol

Are records routinely collected at specific ages?Yes
What record taking protocol is used:Clinical reports and photography at hospital
Dental cast, Rx and photography at orthodontist cabinet (not available in hospital)
Speech follow up at school with the language terapist

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:Part
Speech and language therapy costs:Part
Comments on the service provision:Speech therapist is provided at school through the special aid program to development of language in compromised patients. Medical specialist on Rehabilitation is responsible to follow up the progress of language skills
Orthodontic treatment is provided in private practice and the cost is partially supported by the government.
Dental care is provided on public services for the definitive dentition until 16 years
Oral&Maxillofacial surgeon coordinates the treatment in dental aspects

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:Joaquin Garatea Crelgo (Maxillofacial Surgeon)
Paloma Rodriguez Garcia (ENT)
Aurelia Mena Mur (Rehabilitation)
Juan José Los Arcos (Orthodoncist)

Current research activity and data collection

Type(s) of software used:Access
Willing to share Powerpoint presentations:Yes

Potential clinical research activities

Clinical research activities interested in being involved in:

Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:Sociedad Española de Fisuras Faciales

Total number of cases per annum

Total cases per annum:15