COMPLEJO HOSPITALARIO DE NAVARRA
Principle contact details
| Contact name: | JOAQUIN GARATEA |
| Address: | C/IRUNLARREA s.n, 31008, Pamplona (Navarra) SPAIN |
| Country: | Spain |
| Telephone: | 34848429477 |
| Email: | joaquin.garatea.crelgo@cfnavarra.es |
Other team members
| Surgeon: | Joaquin Garatea (Maxillofacial surgeon) Isabel Quilez (Maxillofacial surgeon) |
| Speech therapist: | Eva Muñoz Yuste |
| Orthodontist: | Beatriz Lahoz; Juan José Los Arcos |
| Clinical geneticist: | Carmen Mendivil |
| Otolaryngologist: | Paloma Rodríguez García |
| Specialist nurse: | Teresa Blasco |
| Psychologist: | Joseba Cerrillo Bilbao |
| Other: | Rehabilitation medicine: Aurelia Mena; Maite Lizarraga |
| Patient follow up: | Joaquin Garatea |
Support group
| Support group contact name: | ALAFINAwww.alafina.esasociacionalafina@yahoo.es |
Annual case load
| Cleft palate: | 5 |
| Pierre Robin: | 0-1 |
| Cleft lip & palate (CLP) Unilateral (UCLP): | 5 |
| Bilateral (BCLP): | 1 |
| Cleft lip (CL) Unilateral (UCL): | 5 |
| Bilateral (BCL): | 1 |
| Number of syndromic cases: | 1 |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | 6 months; Millard II/ 18 months Von Langwenbeck |
| Complete BCLP: | 6 Months; Mulliken/ 18 Month Von Langenbeck |
| Isolated CP: | 12 months; Von Langenbeck/ Furlow |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| What record taking protocol is used: | Clinical reports and photography at hospital Dental cast, Rx and photography at orthodontist cabinet (not available in hospital) Speech follow up at school with the language terapist |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | Part |
| Speech and language therapy costs: | Part |
| Comments on the service provision: | Speech therapist is provided at school through the special aid program to development of language in compromised patients. Medical specialist on Rehabilitation is responsible to follow up the progress of language skills Orthodontic treatment is provided in private practice and the cost is partially supported by the government. Dental care is provided on public services for the definitive dentition until 16 years Oral&Maxillofacial surgeon coordinates the treatment in dental aspects |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | Joaquin Garatea Crelgo (Maxillofacial Surgeon) Paloma Rodriguez Garcia (ENT) Aurelia Mena Mur (Rehabilitation) Juan José Los Arcos (Orthodoncist) |
Current research activity and data collection
| Type(s) of software used: | Access |
| Willing to share Powerpoint presentations: | Yes |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
| Laboratory genetics/genomics research: | Yes |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | Sociedad Española de Fisuras Faciales |
Total number of cases per annum
| Total cases per annum: | 15 |