Cleft palate team Linköping
Principle contact details
| Contact name: | Dr Agneta Marcusson |
| Address: | Käkkliniken Universitetssjukhuset SE-581 85 Linköping Sweden |
| Country: | Sweden |
| Telephone: | '+461038548 |
| Email: | agneta.marcusson@lio.se |
Other team members
| Surgeon: | Avni Abdiu plastic surgeon |
| Speech therapist: | Pia Bodling, Ann-Sofie taleman |
| Orthodontist: | Agneta Marcusson, Gudrun Stålhand |
| Clinical geneticist: | Margarita Stefanova |
| Otolaryngologist: | Ulrika Ekblad |
| Specialist nurse: | Kristina Andersson |
| Psychologist: | Tima Sheiakh |
| Patient follow up: | Agneta Marcusson |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | 3 months lip |
| Complete BCLP: | 3 months lip |
| Isolated CP: | 12 months palate |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | All |
| Speech and language therapy costs: | All |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | Agneta Marcusson, orthodontics Avni Abdiu, plastic surgery |
Current research activity and data collection
| Type(s) of software used: | Excel, Word, |
| Participation in inter-centre studies: | Yes |
| Details of studies: | Scandcleft TOPS |
| Participation in other collaborations (projects): | Yes |
| Details of projects: | Swedish national registry |
EU Biobank
Stored CLP DNA samples available for use in future studies:
| Number for CP: | No not aware |
| Number for CLP: | No not aware |
| Other CFA: | No not aware |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
Total number of cases per annum
| Total cases per annum: | 20 |