Cleft palate team Linköping

Principle contact details

Contact name:Dr Agneta Marcusson
SE-581 85 Linköping

Other team members

Surgeon:Avni Abdiu plastic surgeon
Speech therapist:Pia Bodling, Ann-Sofie taleman
Orthodontist:Agneta Marcusson, Gudrun Stålhand
Clinical geneticist:Margarita Stefanova
Otolaryngologist:Ulrika Ekblad
Specialist nurse:Kristina Andersson
Psychologist:Tima Sheiakh
Patient follow up:Agneta Marcusson

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:3 months lip
Complete BCLP:3 months lip
Isolated CP:12 months palate

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:Agneta Marcusson, orthodontics
Avni Abdiu, plastic surgery

Current research activity and data collection

Type(s) of software used:Excel, Word,
Participation in inter-centre studies:Yes
Details of studies:Scandcleft
Participation in other collaborations (projects):Yes
Details of projects:Swedish national registry

EU Biobank

Stored CLP DNA samples available for use in future studies:

Number for CP:No not aware
Number for CLP:No not aware
Other CFA:No not aware

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes

Total number of cases per annum

Total cases per annum:20