Cleft palate and Craniofacial Centre, Helsinki University Central Hospital

Principle contact details

Contact name:Jorma Rautio
Address:mail PO Box 266
00029 HUS, Finland
Street Address
Töölö hospital, Topeliuksenkatu 5, 00260 Helsinki, Finland
Telephone:+358 50 427 1812
Web address:Visit website

Map of location

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Other team members

Surgeon:Juri Hukki, plastic, Jorma Rautio, plastic, Pia Vuola plastic, Junnu Leikola plastic and max fac
Speech therapist:Suvi Alaluusua, Elina
Orthodontist:Kirsti Hurmerinta, Arja Heliövaara, Sirpa Railavo
Otolaryngologist:Merja Pettay
Specialist nurse:Ulla Elfving-Little
Patient follow up:surgeons and orthodontista

Support group

Support group address:Suhupo

Annual case load

Cleft palate:60-70
Pierre Robin:5
Cleft lip (CL) Unilateral (UCL):20-25
Bilateral (BCL):872012
Number of syndromic cases:this is too exhaustive to answer here

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:lid and HP 4 mos, SP 9 mos
Complete BCLP:lip 4 mos, palate 9 mos
Isolated CP:9 mos

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:Part
Orthodontic costs:Part
Speech and language therapy costs:Part
Comments on the service provision:patient fee 5 % of total cost

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:see team members

Current research activity and data collection

Type(s) of software used:Cleft register from 1952, almost 8000 patients
Participation in inter-centre studies:Yes
Details of studies:Scandcleft
Published research papers:Yes
Details of publications:lots

EU Biobank

Stored CLP DNA samples available for use in future studies:

Number for CP:no

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:no

Total number of cases per annum

Total cases per annum:110