Centrum voor Schisis & Craniofaciael Afwijkingen UZBrussel/VUB

Principle contact details

Contact name:Maurice Y. Mommaerts
Address:European Face Cente
Universitair Ziekenhuis Brussel
Laarbeeklaan 101
1090 Brussels, Belgium
Web address:Visit website

Other team members

Surgeon:Maurice Mommaerts
Speech therapist:Evelien Van den Eynde
Clinical geneticist:Kathelijn Kenmolen
Otolaryngologist:Ina Foulon
Specialist nurse:Ignes Weyts
Other:Marie-Paule Vanhorenbeeck, social worker

Support group

Support group contact name:VAGABelgische vereniging voor schisis en craniofaciale afwijkingen Mevr Jet VermeylenJos Craeybeckxlaan 8, 2180 Ekeren, Belgietel 03/5423780 fax 03 5417804 email VAGA@glo.be GSM 0477 604096Site: http// www.vaga.be

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:3-4 weeks, lip adhesion
Complete BCLP:3-4 weeks, lip adhesion
Isolated CP:1 year, soft palate repair

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:Part
Orthodontic costs:Part
Speech and language therapy costs:All

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:Mie Cocquyt, speech therapist, PhD student
Maurice Mommaerts, cleft surgeon

Non-clinical and laboratory research

Non-clinical and laboratory team members who are or would like to be involved in clinical research:

Member details:Dr. Richa Gala, research fellow, cleft surgery

Current research activity and data collection

Type(s) of software used:Systematic review on outcome acc to protocol
Published research papers:Yes
Details of publications:see www.mauricemommaets.eu
List of publications in "Pediatric and congenital surgery" section
Willing to share Powerpoint presentations:Yes

Potential clinical research activities

Clinical research activities interested in being involved in:

Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes

Total number of cases per annum

Total cases per annum:30