Centro Regionale per la diagnosi e la cura delle malformazioni cranio maxillo facciali – U.O.C. Chirurgia Maxillo-Facciale – Ospedale San Bortolo – Vicenza

Principle contact details

Contact name:0039- 0444752786 0444752789
Address:Via Rodolfi 37 - Vicenza
Telephone:+39 - 0444752786 – 2789
Web address:Visit website

Map of location

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Other team members

Surgeon:Dr. Ugo Baciliero, Dr Manuela Riga
Speech therapist:Dr. Flavia Nardi sig.ra Fabrizia Marciante
Clinical geneticist:Dr. Francesco Carinci
Otolaryngologist:Dr. Riccardo D'Eredità Dr. Antonio Frisina
Specialist nurse:Mrs Borgo Rossella
Psychologist:Dr. Rosa Maria Quatraro
Other:Dr Morello Barbara, Mr Bellin Bellino, Mrs Giampaola Missaggia
Patient follow up:Dr. Ugo Baciliero, Dr. Manuela Riga, Dr. Barbara Morello

Support group

Support group address:LPS Lavoriamo per un Sorriso ONLUS
Telephone: 0444752786
Website: www.lavoriamoperunsorriso.it

Annual case load

Cleft palate:27
Pierre Robin:5
Cleft lip (CL) Unilateral (UCL):24
Bilateral (BCL):9
Number of syndromic cases:5
S. Apert, S. Goldenhar, Plagiocefalie, S. Franceschetti
S. Crouzon

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:3 months : soft palate repair (Widmaier technique), 6 months: lip and nose repair (Tennison- Mc Comb technique), 18 months : hard palate closure (Vomer flap technique) 9- 10 years: alveolar bone grafting.
Complete BCLP:3 months : soft palate repair (Widmaier technique), 6 months: lip repair and colummelar lengthening (Manchester technique and open rinoplastic), 18 months : hard palate closure (Vomer flap technique) 9- 10 years: alveolar bone grafting.
Isolated CP:3 months : soft palate repair (Widmaier technique) 18 months: hard palate closure (two layers), or complete closure (Von Langebeck technique)

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:Ugo Baciliero - surgery - inter center
Manuela Riga - surgery - inter center
Flavia Nardi - speech therapy - inter center
Rossella Borgo - nursery - cohort

Current research activity and data collection

Type(s) of software used:Word, Excel. other
Participation in other collaborations (projects):Yes
Details of projects:Geni Coinvolti nella labiopalatoschisi non sindromica
Published research papers:Yes
Details of publications:Respiratory distress in Pierre Robin sequence: an experience with mandible traction by wires
Willing to share Powerpoint presentations:Yes

EU Biobank

Stored CLP DNA samples available for use in future studies:

Number for CP:40
Number for CLP:230

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
DNA collection:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:SILPS

Useful websites or links

Useful websites or links:www.centrolabiopalatoschisi.it