Centre labio-palatin Albert Deconnink

Principle contact details

Address:Clinique Universitaire St Luc
10 avenue Hippocrate
1200 Bruxelles
Telephone:+32 2 7641404

Other team members

Surgeon:Bayet Bénédicte, Plastic Surgeon
Speech therapist:Bouquet Donatienne
Orthodontist:Bousaba Sami
Clinical geneticist:Revencu Nicole
Otolaryngologist:Castelein Sarah
Specialist nurse:Wable Nadia

Support group

Support group contact name:Aflapa ( parents group) http//www.aflapa.org severine.faure@aflapa.org +32 10617741

Annual case load

Cleft palate:30
Pierre Robin:30
Cleft lip & palate (CLP) Unilateral (UCLP):35
Bilateral (BCLP):5
Number of syndromic cases:20

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:neonatal period labioplasty and rhinoplasty
Complete BCLP:neonatal period labioplasty and rhinoplasty
Isolated CP:3 month staphylorraphy and earing tubes

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:Part
Orthodontic costs:Part
Speech and language therapy costs:Part

Current research activity and data collection

Type(s) of software used:excel
Participation in inter-centre studies:Yes
Participation in other collaborations (projects):Yes
Details of projects:with differents european center
Published research papers:Yes
Details of publications:genetic papers
Willing to share Powerpoint presentations:Yes

EU Biobank

Stored CLP DNA samples available for use in future studies:

Number for CP:to be see with the genetician of our center

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes

Total number of cases per annum

Total cases per annum:100