Centre labio-palatin Albert Deconnink
Principle contact details
| Address: | Clinique Universitaire St Luc 10 avenue Hippocrate 1200 Bruxelles Belgium |
| Country: | Belgium |
| Telephone: | +32 2 7641404 |
| Email: | benedictebayet@hotmail.com |
Other team members
| Surgeon: | Bayet Bénédicte, Plastic Surgeon |
| Speech therapist: | Bouquet Donatienne |
| Orthodontist: | Bousaba Sami |
| Clinical geneticist: | Revencu Nicole |
| Otolaryngologist: | Castelein Sarah |
| Specialist nurse: | Wable Nadia |
Support group
| Support group contact name: | Aflapa ( parents group) http//www.aflapa.org severine.faure@aflapa.org +32 10617741 |
Annual case load
| Cleft palate: | 30 |
| Pierre Robin: | 30 |
| Cleft lip & palate (CLP) Unilateral (UCLP): | 35 |
| Bilateral (BCLP): | 5 |
| Number of syndromic cases: | 20 |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | neonatal period labioplasty and rhinoplasty |
| Complete BCLP: | neonatal period labioplasty and rhinoplasty |
| Isolated CP: | 3 month staphylorraphy and earing tubes |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | Part |
| Orthodontic costs: | Part |
| Speech and language therapy costs: | Part |
Current research activity and data collection
| Type(s) of software used: | excel |
| Participation in inter-centre studies: | Yes |
| Participation in other collaborations (projects): | Yes |
| Details of projects: | with differents european center |
| Published research papers: | Yes |
| Details of publications: | genetic papers |
| Willing to share Powerpoint presentations: | Yes |
EU Biobank
Stored CLP DNA samples available for use in future studies:
| Number for CP: | to be see with the genetician of our center |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
| Laboratory genetics/genomics research: | Yes |
Total number of cases per annum
| Total cases per annum: | 100 |