Centre Hospitalier Universitaire Vaudois

Principle contact details

Contact name:Judith Hohlfeld
Address:Head of pediatric Surgery
CHUV
Rue du Bugnon
1011 Lausanne
Switzerland
Country:Switzerland
Telephone:+41.21.314.30.74
Email:judith.hohlfeld@chuv.ch
Web address:Visit website

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Other team members

Surgeon:Judith Hohlfeld + Anthony de Buys-Roessingh (pediatric plastic surgeons)
Speech therapist:Chantal Zbinden
Orthodontist:Georges Herzog + Maïke Fabré
Clinical geneticist:Marie-Claude Addor
Otolaryngologist:Jaques Cherpillod + François Waridel
Specialist nurse:Christelle Jung
Psychologist:Josée Despars
Other:ENT secondary rhinoplasties: Philippe PascheCranio-facial surge(secondary): Martin Broome
Patient follow up:Judith Hohlfeld

Support group

Support group address:Isabelle trezi-Meurant president of Le bouche-à-oreilles
tel: +41.21.800.49.00
email: baoreilles@gmail.com
www.bouche-à-oreilles.org

Annual case load

Cleft palate:20
Pierre Robin:5
Cleft lip (CL) Unilateral (UCL):5
Bilateral (BCL):2
Number of syndromic cases:Van der Woude, Stickler, 22q11.2

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:3 months veloplasty
Complete BCLP:3 months veloplasty
Isolated CP:4-6 months

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?
Yes

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All
Comments on the service provision:Excellent

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:Judith Hohlfeld (+Josée Despars:mother-child relations and developpement)(+ P.Pasche + C.Zbinden:autologous fat injection in VPI)

Current research activity and data collection

Type(s) of software used:Excel, Word
Published research papers:Yes
Research grant funding received:Yes
Details of funding:Swiss National Foundation (psych studies)
Willing to share Powerpoint presentations:Yes

Potential clinical research activities

Clinical research activities interested in being involved in:

Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:Swiss Cleft lip and palate association