Center for Craniofacial Disorders, Institute of Mother and Child, Warsaw, Poland

Principle contact details

Contact name:Prof. Maria Hortis- Dzierzbicka
Address:Institute of Mother and Child, Kasprzaka 17A,Warsaw, Poland
Telephone:+48 22 3277140

Map of location

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Other team members

Surgeon:Wlodzimierz Piwowar, Zbigniew Surowiec, Orest szczygielski,
Speech therapist:Malgorzata Budner, Barbara Offert
Orthodontist:Doroita Cudzilo, MalgorzatA Palczynska, Jolanta Kostrzewa
Clinical geneticist:Ewa Obersztyn
Otolaryngologist:Maria Hortis-dzierzbickas (ENTphoniatrics
Specialist nurse:Elzbieta Pilatowska
Patient follow up:No one person has been appointed

Support group

Support group address:do not exist

Annual case load

Cleft palate:over 100
Pierre Robin:13 in 2012
Cleft lip (CL) Unilateral (UCL):100 - CLP, 56 - UCLP
Bilateral (BCL):44
Number of syndromic cases:about 50

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:6-12 months of age - One-stage cleft lip, hard and soft palate repair
Complete BCLP:6-12 months of age - One-stage bilateral cleft lip, hard and soft palate repair
Isolated CP:6-12 months of age - One-stage hardf and soft palate repair

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:All
Speech and language therapy costs:All

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:Wlodzimierz Piwowar, Zbigniew Surowiec - surgery - Cohort studies, clinical trials

Elzbieta Radkowska - Speech therapy - Like above

Dorota Cudzilo, Jolanta Kostrzewa, Malgorzata Palczynska - orthodontics - Like above

Maria Hortis-Dzierzbicka - ENTphoniatrics - Cohort studies, clinical trials, Intercenter comparisons

Non-clinical and laboratory research

Non-clinical and laboratory team members who are or would like to be involved in clinical research:

Member details:Ewa Obersztyn - genetics

Current research activity and data collection

Type(s) of software used:Word, excel, other
Participation in inter-centre studies:Yes
Details of studies:Prof. M. Hortis-Dzierzbicka: Eurocleft and Eurocran intercenter studies
Participation in other collaborations (projects):Yes
Details of projects:Prof. M. Hortis-Dzierzbicka : contributor to Eurocran…Speech Project, CLISPI Project, member of Task Force 5 Speech Assessment…for Int Congress in , 2013
Published research papers:Yes
Details of publications:multiple

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:No