Bambino Gesu’ Ospedale Peddiatrico – U.O.C. di Chirurgia Plastica e Maxillofacciale

Principle contact details

Contact name:MARIO ZAMA M.D.
00165 - ROMA - ITALIA
Web address:Visit website

Map of location

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Other team members

Surgeon:Mario Zama (Plastic Surgery), Patricia Cecchi (Plastic Surgeon)
Speech therapist:Stefania Vagnoni
Orthodontist:Loretta Chianella, Gaia Bompiani
Clinical geneticist:Cristina Digilio
Otolaryngologist:Sergio Bottero, Pasquale Marsella
Specialist nurse:Patrizia Tramutola, Arianna Borboni, Anna Giovarri
Psychologist:Simonetta Gentile
Patient follow up:Mario Zama

Annual case load

Cleft palate:50
Pierre Robin:15
Cleft lip (CL) Unilateral (UCL):12
Bilateral (BCL):5
Number of syndromic cases:25

Primary surgical protocol

Timing of first repair and type of operation.

Complete UCLP:6 months, one stage reconstruction with periosteal graft from tibia
Complete BCLP:6 months, one stage reconstruction with periosteal graft from tibia
Isolated CP:Veloplasty, von langenbeck, veau wardill

Record collection protocol

Are records routinely collected at specific ages?Yes
Does this conform to WHO timing recommendations
(birth, 5, 10, 15 and 20 years)?

State coverage of costs

Are the costs of the following treatments covered by the state (free to the patient)?

Surgery costs:All
Orthodontic costs:None
Speech and language therapy costs:Part

Clinical research

Clinical team members who are or would like to be involved in clinical research:

Member details:Federica Maggiulli (plastic surgeon)

Current research activity and data collection

Type(s) of software used:Excel, Access, Word and others
Willing to share Powerpoint presentations:Yes

Potential clinical research activities

Clinical research activities interested in being involved in:

Randomised clinical trials:Yes
Inter-centre comparison of outcome:Yes
Prospective study:Yes
DNA collection:Yes

Potential laboratory based research activities

Laboratory based research activities interested in being involved in:

Laboratory genetics/genomics research:Yes
Animal models research:Yes

National cleft lip and palate / craniofacial scientific organisation

Organisation details:Yes: