Department of Plastic Surgery, Sahlgrenska University Hospital, Gothenburg, Sweden
Principle contact details
| Contact name: | Hans Mark, MD, PhD |
| Country: | Sweden |
| Telephone: | +46-31-342 7620 |
| Email: | hans.mark@vgregion.se |
Other team members
| Speech therapist: | Christna Persson, Christina Havstam |
| Orthodontist: | Sara Rizel, Midia Najar Chalien |
| Specialist nurse: | Anna Paganini |
| Psychologist: | Marizela Klajnic |
| Patient follow up: | Hans Mark |
Annual case load
| Cleft palate: | 10 |
| Pierre Robin: | 10 |
| Cleft lip & palate (CLP) Unilateral (UCLP): | 20 |
| Bilateral (BCLP): | 10 |
| Number of syndromic cases: | 20 |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | 6 months, Soft palate repair and lip and nose plasty |
| Complete BCLP: | 6 months, Soft palate repair and lip and nose plasty |
| Isolated CP: | 6 months, Soft palate repair |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | All |
| Orthodontic costs: | All |
| Speech and language therapy costs: | All |
Current research activity and data collection
| Type(s) of software used: | Excel Word File Maker Pro SPSS |
| Participation in inter-centre studies: | Yes |
| Details of studies: | Scand Cleft TOPS |
| Participation in other collaborations (projects): | Yes |
| Published research papers: | Yes |
| Research grant funding received: | Yes |
| Willing to share Powerpoint presentations: | Yes |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Randomised clinical trials: | Yes |
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
| Laboratory genetics/genomics research: | Yes |
National cleft lip and palate / craniofacial scientific organisation
| Organisation details: | SWEDCLEFT |
Total number of cases per annum
| Total cases per annum: | 45 |