Centrum voor Schisis & Craniofaciael Afwijkingen UZBrussel/VUB
Principle contact details
| Contact name: | Maurice Y. Mommaerts |
| Address: | European Face Cente Universitair Ziekenhuis Brussel Laarbeeklaan 101 1090 Brussels, Belgium |
| Country: | Belgium |
| Email: | craniofacial@uzbrussel.be |
| Web address: | Visit website |
Other team members
| Surgeon: | Maurice Mommaerts |
| Speech therapist: | Evelien Van den Eynde |
| Clinical geneticist: | Kathelijn Kenmolen |
| Otolaryngologist: | Ina Foulon |
| Specialist nurse: | Ignes Weyts |
| Other: | Marie-Paule Vanhorenbeeck, social worker |
Support group
| Support group contact name: | VAGABelgische vereniging voor schisis en craniofaciale afwijkingen Mevr Jet VermeylenJos Craeybeckxlaan 8, 2180 Ekeren, Belgietel 03/5423780 fax 03 5417804 email VAGA@glo.be GSM 0477 604096Site: http// www.vaga.be |
Primary surgical protocol
Timing of first repair and type of operation.
| Complete UCLP: | 3-4 weeks, lip adhesion |
| Complete BCLP: | 3-4 weeks, lip adhesion |
| Isolated CP: | 1 year, soft palate repair |
Record collection protocol
| Are records routinely collected at specific ages? | Yes |
| Does this conform to WHO timing recommendations (birth, 5, 10, 15 and 20 years)? | Yes |
State coverage of costs
Are the costs of the following treatments covered by the state (free to the patient)?
| Surgery costs: | Part |
| Orthodontic costs: | Part |
| Speech and language therapy costs: | All |
Clinical research
Clinical team members who are or would like to be involved in clinical research:
| Member details: | Mie Cocquyt, speech therapist, PhD student Maurice Mommaerts, cleft surgeon |
Non-clinical and laboratory research
Non-clinical and laboratory team members who are or would like to be involved in clinical research:
| Member details: | Dr. Richa Gala, research fellow, cleft surgery |
Current research activity and data collection
| Type(s) of software used: | Systematic review on outcome acc to protocol |
| Published research papers: | Yes |
| Details of publications: | see www.mauricemommaets.eu List of publications in "Pediatric and congenital surgery" section |
| Willing to share Powerpoint presentations: | Yes |
Potential clinical research activities
Clinical research activities interested in being involved in:
| Inter-centre comparison of outcome: | Yes |
| Prospective study: | Yes |
| DNA collection: | Yes |
Potential laboratory based research activities
Laboratory based research activities interested in being involved in:
| Laboratory genetics/genomics research: | Yes |
Total number of cases per annum
| Total cases per annum: | 30 |